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This is the story of our precious daughter, Sara Rose. She was born at 27 weeks. This details our journey as a family through the ups and downs of this situation. She is our 3rd daughter, she has hydrocephalus and now lives with a shunt. She is home now and her older sisters adore her. Here we are, living and depending on the strength and grace of our Father in Heaven.
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2009
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June
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- Celebrating 32 weeks and 4 lbs with a crazy hat!
- 32 weeks and 4 lbs!
- We've Been Hired by NICU
- Sara has gained 1lb!
- Saturday PM
- It's a Milkshake Night!
- One Month Old!!
- Dad's Blood to the Rescue
- 4 weeks old!!
- Father's Day
- Kangarooing Again!
- Thursday Night
- Meeting with Neurosurgeon
- Tuesday Night
- Texting from hospital- tap on reservoir was much l...
- Happy 3 Weeks Old!
- An Explosion in NICU
- The Holding is back on!
- Saturday Evening
- Mun gode maka Allah
- Check out my new hat and snugly! Courtesy of Threa...
- Weight and Feeding Update
- Daddy Daughter Time
- Update on Weight
- Tuesday Afternoon
- Point of Clarification
- Listen closely for the hiccupsDozing off in mom's ...
- 2 Week Old Present
- Doing great with feeding- 3.5 cc per hr. I'm sitti...
- Sara is up to 3cc's per hour and down to 28% O2. D...
- Continued Improvement
- Videos of Sara
- Jennifer gets a treat!
- First try success
- Friday Night
- A Quiet Day for Sara
- Thursday Night
- It's nice to breathe for a day
- It looks better
- Thanks for the hope
- Sara Wed Afternoon
- Wednesday PM
- Heavy Hearts, but still hoping
- New Home
- One week old!! New home and new valley
- Hey everyone, Sara does have some bleeding on the ...
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June
(46)
Came across you via Kelly's Korner.
ReplyDeleteMy husband and I had twins born at 28 weeks. They are getting ready to celebrate their 2nd birthday in a few weeks. My heart goes out to you and your family. We will keep you in our prayers.
Rachel
My blog from when they were born:
http://hananielsgirl.xanga.com/?uni1875825-direction=n&uni1875825-nextdate=7%2f10%2f2007+16%3a3%3a29.047#module-1875825
Ah the all to familiar take out box! Thats what we called it! Just know that she is in the BEST place ever!!!! We were there 4 months until our ins co kicked us out. Evan has since graduated the NICU and is now in the PICU for a few days since surgery was yest. We will be back in the child hosp then home for the 1st time! We have been keeping in touch almost daily with our NICU nurses, they are so amazing and you will miss them once you are out. Do me a favor!!!! ASK FOR A PRIMARY NURSE FOR HER IN THE DAY AND NIHT SHIFT!!! We didn't know we had this option till someone asked 2 months down the road, who are his primary nurses?? huh! we are so glad we found out and still to this day keep in touch with them. Read our blog to meet them , they came to visit us the other day. Once she holds her temp, the box will stay open and you will feel closer. Ask when you can kangaroo hold too! We had to wait 1 month.
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