Sara in Spring

All continues to go well in the life of Sara Rose! We have had a greater winter and spring. Hardly any sicknesses for any of our girls, but especially Sara. It's hard to believe, but it's been over 13 months since she was in a hospital. God has been very gracious and good to us and we praise Him for that.

Sara recently had a check up with the neurosurgeon and he was very very pleased. Her head is a good size, she is a good size over all. She is developing well. Sara is about to begin speech therapy. She had between 1-2 dozen words, all one syllable. She has very good cognition - she knows what she wants and understands you. But she just can't put it into words. The therapist thinks if we hit it hard for the next year she can be caught up by three.

Sara is a very happy, smiling, laughing, squealing kid. She also has a little temper, which I am sure comes from her Cajun mother. It's really hard to put into words all the wonderful little things about her. But if you knew her, you would be amazed at how far she has come and how much fun she is. At church I call her a little politician. She walks around saying high to everyone sitting around a table eating. It's really funny.

The Neurosurgeon said she probably wouldn't need a shunt extension for 3-4 more years and that may last her another 20.

How can you continue to pray for Sara? Praise God for all the wonderful ways He has worked in her life and made her such a joy to know and raise. Pray for her speech therapy to be effective. Pray for her continued fine motor development.

Thanks for checking in - we are doing great!

This is the funny side of Sara, she will walk around doing this kind of stuff all the time.

Ooh, I've discovered water hoses and I like them!

A girl living in the country has to have overalls!

I don't even know what to say

We looooove being outside!

We love our new dog - Buddy. Our last one was hit by a car last October. Buddy is awesome with the kids, and even though still a puppy he has already learned to be very very careful around Sara. Well, he learned that is better than facing the wrath of a momma.

Big girl on a swing

Emma Grace and Sara

Sara has grown very attached to her blanket

Another one of Sara's favorite tricks - looking between her legs

Helping mom cook in pj's and a tutu - we think she learned to dress from Emma Grace.

Froggy boots and no pants - what a great day to play outside

Ready to go play in the snow. Got about an inch one day - not bad for La. She hated it when it was snowing, enjoyed it a ton the next day. We did find her face down a few times in the snow.

Look mom, a new hiding place

Helping mom cook - would you like stewed, fried, or boiled?

Leave this kid alone and it gets quiet and this is going to be what you find. She is a mess maker beyond compare!

Now what exactly is this thing I am sitting on?

Merry Christmas!

All is well with Sara Rose and her family. We have had a wonderful Christmas and past few months since our last update. As you can see in the pics, she is doing great and they only tell just part of the picture. She is growing up into quite a young little girl with a ton of personality. Her sisters are having loads of fun with her and she with them. She basically follows them around all day, and they like it. And when they don't, she will wander down the hall and find a bedroom door closing in her face. To which she usually replies with a grunt of frustration.

THE LOOK

This is the look Sara began to give us around thanksgiving and has proceeded to give just about anyone and everyone who walks up and talks to her. She will sometimes hold it for several seconds and then bust out with a big smile. Or, she will just give you the look until she decides not too. She will also sometimes move through her routine of faces. She will give THE LOOK, then make her an O with her lips and face, then blow at you and has added sticking her tongue out. Very funny.

I tried to capture some of her personality and looks on a few short videos. You can find them here and here.

Developmentally, Sara is doing great. She is walking so well her therapy has moved from weekly to monthly. We are working more and more on fine motor skills and trunk strength. She is getting stronger and stronger each week. Her docs are happy with how she is growing, she is right about average in height and weight for an 18 month old. It takes about 2-3 years for a preemie to catch up, and she is right there already. She is communicating more and more, she has words and can say syllables for mom, dad, sissy, shoe, sock, paw paw (not maw maw which drives maw maw nuts), more (her favorite word), no (again - she is very clear when she doesn't want something), and more that I can't remember off the top of the head.

We are noticing her remembering things done days before more and more. Remembering how things are done, where things are. She is stacking blocks with help, but still loves to unstack them the most with a violent giggle.

What captivates us the most about Sara is her charming personality. She is just so lovable, sweet, and funny. She loves to interact with everyone. She walks around laughing and squealing everywhere. And seems to know she is funny and likes it. It's hard to sum up all she is doing in a few paragraphs, just know she is doing wonderful. Thanks for your continued interest and prayers. We are having a ball!

Playing in the leaves with big sisters.

A little tiara that stayed on her head for long enough to snap this, a few seconds later it was coming off.

Her sisters are supposed to be folding towels, it turned into a wrestling match. I'm not sure who is winning.

This started so simple, playing with Sara on my stomach that turned into a sister dogpile.

Two Steps Forward, No Steps Back

Hi again from Sara world. The little gal is just improving by leaps and bounds. She took her first two steps this past Saturday night. We've been waiting for it. She has continually gotten stronger and closer to walking. She started standing up on her own with no help. Then she could walk with you holding one hand. Then Saturday night she took a little step to balance herself, and then one more to the cheers of her family.

As with any kid though, she can get around faster by crawling and so she still prefers that. In fact, she was all the way in the back of the house with Jennifer one morning while she got ready, heard Abigail playing the piano all the way in the front of the house and took off to hear the music. She loves to dance and bob her head to music. Trying to get that on video. Especially to Barney songs on TV, much to the chagrin of her older sisters who wouldn't be caught dead watching the purple one, even though they could sing all his songs 3 years ago. Kids....

Sara was released from seeing the heart doctor earlier in August, one doc we never have to see again unless there is a problem.

She is also communicating more and more. Several new sounds this week. She has little sounds and words that she uses and we are learning what they mean. In fact, Jennifer has been teaching her cold. Touching something cold to her, saying brrr cold, making a little sound with her lips. Well, Sara will then blow through her lips making them flap together for cold. Yesterday, grocery shopping, Jennifer looks down at Sara in the buggy, she has her face planted in a bag of frozen corn on the cob and is making her sound for cold. Very funny.

This kid loves to eat. Doesn't have any food allergies so far, and has started drinking milk. Of course with your third you are much more lenient than with your first, so she has eaten more ice cream and candy than our other two ever dreamed of eating at this age. And you should see Sara go when she gets some sweets in her mouth. Giggling, laughing, smiling - how can you not keep them coming.

Contrary to what you may think with us having a blog filled with pics, we are actually not a very good picture taking family. And now that life has become the normal good busy, not the hospital bad busy, we are back to our non-photogenic selves. So I tried to take a bunch last night. And she was not too impressed with the flash.

By the way, these pics were taken around 10:00. Sara has 7 teeth and we think she is working on some molars, so we are in full-bore-teething-lack-of-sleep. Awake from 9-1 last night.
Yeah. fun. We actually have a few cute videos of her eating a piece of chocolate and clapping with joy and throwing all of the clothes out of the laundry basket. But I can't get the technology to cooperate. I'll figure it out.

Summer time horse lessons, leave house at 7am, Sara plays outside in sun during lesson, and this is what you get on way home. Tooooo tired. I am quite sure Jennifer wasn't taking this pic while she was driving. I am quite sure she got Abigail to take it. Maybe if I say that over and over it will come true.

Waiting to take CT Scan one morning. She couldn't have anything to eat and just could not figure out why we were not giving her a bottle. But thankfully, she was still enough she didn't have to be sedated and got to eat really soon after this. The results of the CT scan were great. The brain has developed a whole lot since her last scan. The Neurosurgeon was very pleased, we don't have to go see him for 6 months!

Just a couple of stories that we get every now and then that remind us of how much God has blessed us with Sara and how far she has come. One nurse who had Sara her first few nights in NICU after she was born ran into someone a few weeks ago who sees Sara often. The nurse asked - Is Sara crawling yet? This person said - Crawling? She's about to start walking! Amazing, said the nurse. Her first few nights this nurse thought Sara wouldn't make it at all or would have severe cerebral palsy.

One heartbreaking sight was the day she took her CT scan. There was another mother there whose son was 4 and had the same degree of brain bleeds as Sara and was not able to walk yet or communicate well. He was born a few weeks earlier than Sara. He had a twin sister who was still not able to sit up. And while our hearts were broken for this mom and praying for her, we were overwhelmed at how much God has blessed us. Why us? Why has He been so good to us? I don't have the answer. But I will sing His praises and tell others of His grace, mercy, and love. Seen partly through Sara. Seen fully and gloriously through Jesus and the cross!

Crawlin', Cruisin', and Mission Trippin'

Cute and...

....mischievous - scary combination

The Fun Times with Sara continue. It's been a great summer and Sara continues to thrive. So much improvement to speak of, I hope I can remember it all. We got 4 teeth, about to be 5. Doesn't matter though, she quit eating baby food a month ago. She's basically eating whatever in small bites and gumming it to death. She likes cheese and yogurt, so no dairy allergies. She can also eat rice, so no rice allergies. She likes most of what we give her. The only thing she really turns her head at is anything she can't chew, like already mushed up. She loves oatmeal, buttered bread and jelly, and fruit bars. And ice cream and a little bit of chocolate.

Sara is also crawling all over the place. She can easily pull up on anything and when she is up she likes to cruise. She is working on standing up on her own without holding on to anything and may get that any day. Once she stands, she will let go and can balance for 5-10 seconds. We are very pleased.

As a family we went with a big group from our church on a mission trip this summer. We got to go and help a church put on a Vacation Bible School. Sara did great. Most of the pics are from the trip. Great week for our church and our family. The kids were awesome, all of them.

Enjoy the pics, thanks for the continued prayers. Just keep asking God to bless with health and development!

Praise the Lord! For it is good to sing praises to our God; for it is pleasant and a song of praise is fitting. Psalm 147:1



See my teeth! Man do I get some good food now!





Dad's job while mom teaches VBS on the mission trip - pour yogurt on my face and then rake it in my mouth with a spoon.

Count Sara - our little vampire. Thankfully this one sleeps all night.





Playing with mom at the block Party



Visiting the swamps of La on the mission trip

Sara's sisters and Abigail's sense of humor

Summer Fun

What a cutie! These were taken at Vacation Bible School, thanks Stephanie

And I know I'm cute, that is what's so ridiculous

All of us except Abigail at VBS. Our VBS blessed us this year by making Sara the recipient for the missions offering. It was unexpected and very generous - thank you all very much!

Wait, didn't June used to be a month? Now it's like a day, maybe two. Wow what a fast month! Sara did great through vacation and Vacation Bible School. And has continued to progress well in her development. She got several good reports from various medical folk:

Assessment Therapist - she sees her every six months. When she assessed Sara last August Sara was rated as a 3 (which is the worst) in every category of development. Now she has no threes! The therapist was very very happy.

Pediatrician - he thought we had switched docs it has been so long since we saw him. He couldn't believe how far she has progressed since he saw her in March. He was really encouraged. He was hoping we could take her off phenobarb which is supposed to help with seizures. But after the blood work, her levels were not where they need to be to take her off. Even though she has never had any seizures, they want to be cautious, so we will check again in six months.

Jennifer had to take her to a lab to have blood work done. The first time they tried an IV and her veins are still shot from her hospital stay in February, they could find nothing. So after poking in her and trying for a while they quit. They would then have to prick her thumb and squeeze out enough blood to check phenobarb levels. But, they did not have the right equipment. Jennifer goes back with her a week later, and while the nurse pricks and squeezes her finger, Sara is smiling at him. When does she cry? Only when he tried to put a band-aid on her. Funny kid.

Ultrasound Technician - Sara had an ultrasound of her heart done as a yearly check up with heart doc. Jennifer hasn't seen the doc, but the technician said it looks perfect. No holes, nothing irregular. Maybe, just maybe we can cross the pediatric cardiologist off our doctor list. We'll find out in August. Why do the ultrasound in June and see the doc in August???? U got me

Sara is sitting up, crawling around (military style), turning over, and can sit up on her own from her tummy. It is amazing how much more able and strong she is. She is still eating great, sleeping great, and has one of the most laid back dispositions of a baby we have seen. She is easy going. But yet she is also immensely curious. If you are holding her and eating something she stares at your mouth with an intense expression like whatever we are doing and whatever is in our mouth is the most amazing thing she has ever seen.

One person (don't remember who) told us she was surprised how happy and laid back Sara was. Many babies in her situation are quite fussy and unhappy most of the time. We chalk it up to the Grace of God, because if she was fussy alot we would always be wondering and worried what's wrong - shunt? bowels? sick? In fact, Sara fought off her first official sickness a few weeks ago. Wasn't serious enough to take her to the doc, but there was snot and a cough for about 2-3 days. No fever. But because of her easy going disposition, we knew something was wrong. She was whiny, wanting to be held all the time, fussy. Exactly like our oldest was at that age, but this was not normal Sara. But she fought it off and was good to go.

Teeth and crawling are the biggest things she is working on. We think she might cut 4 teeth at once. All she has is her little two bottom middle teeth. But her top eye teeth are about the break the surface any day. Didn't know you could get eye teeth before middle teeth. Oh well, Sara doesn't seem to like the word normal. Won't be long before we post a pic or video of her crawling. Enjoy these.

Take a nap poolside on vacation - is there any better nap than this?

Happy Birthday to me!

Birthday cake in a pinch on vacation when you want to be careful what she eats because of allergies. So we have angel food cake, vanilla frosting, and sugary sprinkles. And you know, it wasn't half bad. Except for our 2 1/2 yr old nephew Alex - he said, "I don't like Sara's cake." Honesty - priceless.

Enjoying the beach before the oil arrives

Sara enjoying her birthday cake and song!